sharing care information with you

General Information

Good Practice & Legislation

Useful links

St Nicholas Hospice Care

The Norfolk & Suffolk Palliative Care Academy

The National Council for Palliative Care

Skills for Care


Suffolk Family Carers

Sue Ryder


ReSPECT is a process that creates personalised recommendations for a person's clinical care in a future emergency in which they are unable to make or express choice.

From the Scils newsdesk, the End of Life Care Core Skills Education and Training Framework

My Care Wishes Folder is a development on the My Advance Care Planning documents (also known as yellow folders) to support people in the last 12 months of life. Click here for an NHS letter. You can also download the shared care plan guidance document and the shared care plan template as well as a question and answer sheet. For more information, contact Dawn Barrick-Cook on 01284 758031.

End of Life Care: Helping people to be cared for and die at home is a Housing Lin Practice briefing paper looking at the importance of end of life care delivered at home, describing the context, inequalities in end of life care, and examples of good or emerging practice. 

Sue Ryder has an online community and support service to help you when someone you care about dies, or is facing the end of their life. The service includes Sue Ryder nurses on hand for advice and practical information - or even just a caring conversation with someone who understands, whenever you need it. Click here for further information.

NICE has launched the first guidelines for the NHS on improving care for people who are in their last days of life. Click here.

Better Endings is the National Institute for Health Research (NIHR) dissemination centre’s first themed review focusing on the quality and organisation of care. The review aims to help those delivering, planning or using end of life services to ensure that the right care is delivered in the right place at the right time.

The government has released its response to the Health Select Committee’s report setting out what has been done to improve end of life care.

A report from the National Palliative and End of Life Care Partnership called Ambitions for Palliative and End of Life Care: A national framework for local action 2015-2020

The National Council for Palliative Care & Dying Matters has produced an informative paper Time for Action: Why end of life care needs to improve and what we need to do next. 

An information sheet about end of life care from Skills for Care and The Relatives and Residents Association

The National Institute for Health and Care Excellence, NICE, guidelines scope entitled Care of the dying adult